Publication List
- Hemophilia – In General
- Hemophilia and Families
- For Children and/or Young Adults
- Comprehensive Care
- Self-Care
- Medical Therapy & Procedures
- Hepatitis
- HIV/AIDS
- Von Willebrand Disease
- Insurance
- Sports and Exercise
- Travel
- Women with Bleeding Disorders
- Espanol
- Videos
Hemophilia – In General
Anyone Can Have a Bleeding Disorder
Children’s National Medical Center Informational Brochure
CNMC (undated)
Hemophilia and Mild Hemophilia – What to Expect
AHF, Inc. (2000)
Hemophilia: Current Medical Management
Jonathan Goldsmith (1994)
Hemophilia Treatment Centers – Making a Lifetime of Difference
Nat.l Hemophilia Foundation (undated)
Inhibitors in Hemophilia A: What Patients and Families Need to Know
Jonathan Bernstein, MD, Louis Aledort, MD, Rebecca Berkowitz, MD (undated)
Learning About Hemophilia
Caremark, Inc. (1993)
Living with Chronic Illness . Days of Patience and Passion (book)
Cheri Register (1987)
Mild Hemophilia
Jeanne Lusher & Toni Gorenc (1995)
National Hemophilia Foundation
National Hemophilia Foundation (undated)
Nicholas and Alexandra (book)
Robert K. Massie (1967)
Nosebleeds
National Hemophilia Foundation (2007)
Travel Guide for People with Hemophilia
Baxter (1999)
Update on Efforts to Reduce the Complications Of Hemophilia
Center for Disease Control (1995)
What is Hemophilia?
AHF, Inc. (2000)
Hemophilia and Families
Active Parenting- Teaching Cooperation, Courage and Responsibility (book)
Michael Popkin (1987)
An Educator’s Guide to Bleeding Disorders
Hemophilia Health Services (2007)
Babysitters: My Child Has Hemophilia
Elizabeth Fung (1987)
Beloved Warrior: Hemophilia and Other Battles (book)
Virginia Nyman Arver (1997)
Caring for Your Child with Hemophilia
Nat.l Hemophilia Federation (undated)
Dental Care for Adolescents with Bleeding Disorders, Ages 11-18
Hemophilia Nursing Alliance (2000)
Don’t Be Victimized by Hemophilia: How to Be a More Responsible, Effective Parent
Laureen Kelley (1994)
A Family Guide to Hemophilia B
Aventis Behring, LLC (2001)
Finding Childcare for Children with Bleeding Disorders
Hemophilia Health Services (undated)
Good Parents for Hard Times . Raising Responsible Kids in the Age of Drug Use and Early Sexual Activity (book)
Joanne B. Koch and Linda Freeman (1992)
Guidelines for Finding Childcare
Elizabeth Fund & Elizabeth Davies (1987)
Helping Schools Help Your Child: A Guide for Parents and Caregivers
AHF, Inc. (2000)
Hemophilia: the Young Adult Years (11 to 18)
Armour Pharmaceutical (1995)
Inheritance of Hemophilia
Connie Miller (1992)
Inside a Bleeding Joint (video)
Miles, Inc. (undated)
Journey: The Classic Story of a Son.s Illness and a Family.s Courage (book)
Robert and Suzanne Massie (1975)
Living with a Bleeding Disorder and Its Effects Socially, Emotionally and Psychologically
John Jarratt (2001)
Living with Hemophilia
Peter Jones, MD (1974)
My Blood Doesn’t Have Muscles!
Laureen Kelley (1993)
Parenting Plus – Raising Children with Special Health Needs (book)
Peggy Finston, MD (1990)
Playing It Safe: Bleeding Disorders, Sports and Exercise
National Hemophilia Foundation (2005)
Prevention of Social and Emotional Problems In Boys with Hemophilia
National Hemophilia Foundation (1983)
Prophylaxis: A Fact Sheet for Parents
National Hemophilia Foundation (1999)
Raising a Child with Hemophilia
Laureen Kelley (2nd ed. 1993)
The Child with a Bleeding Disorder: First Aid for School Personnel
National Hemophilia Foundation (undated)
The Student with Hemophilia: A Resource for The Educator
William Beiersdorfer, Maribel Clements & Carol Weisman (1991)
Understanding Students with Bleeding Disorders
Hemophilia Health Services (undated)
Your Child’s Hemophilia: What to Expect During Infancy
Armour Pharmaceutical (1994)
Your Child’s Hemophilia: What to Expect During the School-Age Years (5-10)
Armour Pharmaceutical (1994)
For Children and/or Young Adults
Activity Book: Full of Facts and Fun
Bayer Corp. (1987)
Alexis, the Prince Who Had Hemophilia
Laureen Kelley (1992)
An Exceptional View of Life
By Children with Disabilities (1977)
Defending the Castle (HIV/AIDS)
Parvin Saidi (1989)
Diane Dino’s Dilemma: A Story of Von Willebrand Disease
Jane Shapiro (1994)
Factor Fun
Diane Horbacz (2001)
Getting in the Game – You Can Join and Play
Aventis Behring L.L.C. (2000)
The Great Inhibinator (book)
Chris Perretti Barnes (2006)
Hemophilia: It’s Logical! Visual & Word Puzzles and Games for Children with Hemophilia
Laureen Kelley (1995)
Hemophilia: the Young Adult Years (11-18)
Armour Pharmaceutical (1995)
How to Control Bleeds
Vince (undated)
Inside a Bleeding Joint (video)
Miles Pharmaceutical (undated)
Joshua, the Knight of the Red Snake
Laureen Kelley (undated)
Living with HIV: For Adolescents with Hemophilia
Bobbie Steinhart, LCSW (1990)
Living with HIV: Talking with Your Child
Bobbie Steinhart, LCSW (1990)
Must You Always Be a Boy? The Children’s Storybook of Hemophilia
Laureen Kelley (1991)
Questions and Answers about HIV and AIDS for Young People with Hemophilia
Great Lakes Hemophilia Foundation (undated)
Self-Infusion: Gateway to Independence (video)
Armour Pharmaceutical (undated)
Speak Up for Health- Young People with Chronic Illness and Disabilities Speak About Independence in Health Care
Pacer Center (1992)
Taking Charge: Teenagers Talk about Life & Physical Disabilities
Kay H. Kriegsman, PhD, et al. (1992)
Tell Them the Facts! A Q&A Book to help Young Adolescents Understand Hemophilia and Explain It to Family, Friends And Teachers
Laureen Kelley (1996)
They Will Probably Ask You, “What is Hemophilia?”
Laureen Kelley (undated)
Treat Yourself to a Brighter Future! It’s Time to Hit the Freedom Trail… The Path to Self-Infusion!
American Red Cross (1990)
Understanding Hemophilia – A Young Person’s Guide
Armour Pharmaceuticals (1992)
Comprehensive Care
Comprehensive Care for People with Hemophilia
Shelby Dietrich (1991)
Self-Care
American Chronic Pain Association Workbook Manual
ACPA (1990)
Evaluating Your Choices for Factor VII Replacement
American Red Cross (1996)
Filling in for Nature – The Recombinant Factor VIII Breakthrough
Baxter Hyland Immuno (1999)
Get Moving! Sports & Exercise Guidelines For People with Hemophilia
Baxter (1995)
Handbook of Transfusion Medicine
Robert G. Westphal, MD (1990)
Head First: The Biology of Hope and the Healing Power of the Human Spirit
Norman Cousins (1989)
Inside a Bleeding Joint (video)
Miles Pharmaceutical (undated)
Laugh Your Way to Health
Goodheart, Inc. (undated)
Living Well: A Twelve-Step Response to Chronic Illness and Disability
Martha Cleveland (1993)
Living with HIV: For Adolescents with Hemophila
Bobbie Steinhart, LCSW (1990)
Living with HIV: Talking with Your Child
Bobbie Steinhart, LCSW (1990)
Living with HIV:Information for Adults with Bleeding Disorders
Karal Wasserman, MSW (1990)
Love, Medicine and Miracles – Lessons Learned about Self-Healing from a Surgeon.s Experience with Exceptional Patients
Bernie Siegel, MD (1988)
Managing Pain Before It Manages You
Margaret A. Caudill, MD, PhD (1995)
Obtaining Factor Products: A Consumer Guide to Issues and Choices
National Hemophilia Foundation (1999)
Patient Notification System for the Plasma Products Industry
Various corporations (undated)
Patient Treatment Diary
American Red Cross (1998)
Preventative Dentistry & Hemophilia
Karen Ridley (undated)
Self-Hypnosis in Hemophilia
Karen Olness (1981)
Self-Infusion: Gateway to Independence (video)
Armour Pharmaceutical (undated)
Taking Control: Open Up Your World – A Step-By-Step Guide for Learning Self-Infusion
Aventis Behring (2000)
Treat Yourself to a Brighter Future! It’s Time To Hit the Freedom Trail.. The Path to Self-Infusion!
American Red Cross (1990)
Watercise (video)
Armour Pharmaceutical (1991)
Wellness Made Easy – 101 Tips for Better Health
U. of California, Berkeley Wellness Letter (1990)
Windows: Healing and Helping Through Loss
Mary Joe Hannaford & Michael Popkin (1992)
Medical Therapy & Procedures
Consumer Bill of Rights and Responsibilities for Healthcare Services
National Hemophilia Foundation (1999)
Evaluating Your Choices for Factor VII Replacement
American Red Cross (1996)
Filling in for Nature – The Recombinant Factor VIII Breakthrough
Baxter Hyland Immuno (1999)
Hemophilia & Surgery: What to Expect Before and After Surgery
Craig Epson-Nelms (1995)
Obtaining Factor Products: A Consumer Guide to Issues and Choices
National Hemophilia Foundation (1999)
Orthopedic Management of Hemophilia
Edited by Marvin Gilbert (1980)
Patient Notification System for the Plasma Products Industry
Various corporations (undated)
Physical Therapy in Hemophilia
Sue Cotta, Marie Jutras & Arlis McQuarrie (1986)
Preventative Dentistry and Hemophilia
Karen Ridley (undated)
The Treatment of Hemophilia: Current Orthopedic Treatment
Marvin Gilbert & Jerome Wiedel (1996)
Hepatitis
Hepatitis: Still an Important Concern
Heather Huszti (HANDI Quarterly 1993)
The Many Faces of Hepatitis
National Hepatitis Detection, Treatment and Prevention Program (1994)
Understanding Hepatitis
Leonard Seeff & Maribel Johnson (1997)
Viral Hepatitis: Everybody’s Problem?
American Liver Foundation (1993)
HIV/AIDS
The Basics of HIV Disease: Questions & Answers
Glenn Pierce & Dick James (1992)
Coping with Loss
Kathy Parish (1990)
Daily Nutrition Journal
Roxane Laboratories (1993)
Defending the Castle (for children)
Parvin Saidi (1989)
Double Jeopardy: the HIV/HCV Co-Infection Handbook
Community Prescription Svc. (1999)
Finding Our Way Together: People with AIDS and their Caregivers
American Red Cross (undated)
Get Real! And Be Safe!
Elizabeth Randall-David (1991)
Healthy Eating Makes a Difference – A Food Resource Video for People Living with HIV
Canadian Hemophilia Society (undated)
HIV/AIDS and African Americans
National Minority Aids Council (undated)
Living Well with HIV & AIDS: A Guide To Healthy Eating
Sharon Salomon, Margaret Davis & Cade Fields Gardner (1993)
2001-2002 Medical Management of HIV Infection
John G. Bartlett, MD and Joel E. Gallant, MD (2001)
New HIV Treatment Choices: Weighing Your Options
Susan Cutter (undated)
Serenity and Support – Guidance for People with HIV, Their Families, Friends and Caregivers
Paul Reed (1990)
Participating in a Clinical Trial: A Guide For HIV-Positive People
Nat.l Hemophilia Foundation (1999)
Von Willebrand Disease
Anyone Can Have a Bleeding Disorder
Hemophilia Association of the Capital Area (undated)
Bleeding Disorders in Women Fact Sheet
National Hemophilia Foundation (undated)
Diane Dino’s Dilemma: A Story of von Willebrand Disease (for children)
Jane Shapiro, MSW, ACSW (1994)
Exercise, Sports, and Young Women with VWD
Aventis Behring, LLC (2003)
Exploring von Willebrand Disease
Jill La Fon (1995)
Girls are Sooo Cool!
Aventis Behring LLC (1992)
A Guide to Living with von Willebrand Disease
Renee Paper and Laureen Kelley (2002)
One Week is Enough
Jane Shapiro (1998)
Understanding von Willebrand Disease
Robert Montgomery & Margaret Hilgartner (1991)
Von Willebrand Disease: A Guide for Patients and Families
Hemophilia Health Services (2001)
Von Willebrand Disease – Just the FAQ’s
National Hemophilia Federation (2000)
Women and von Willebrand Disease
AHF, Inc. (2000)
Women with Bleeding Disorders – The Role Of the OB/GYN
Armour Pharmaceutical (1995)
Insurance
Employment Issues in Hemophilia
Edward Carrai & David Linney (1983)
Financial Considerations for Reimbursement of new Technology Hemophilia Products
David Linney (1992)
Guide to Understanding Insurance
Caremark (2003)
Health Insurance Options for Persons with Hemophilia and HIV/ARC/AIDS
Great Lakes Hemophilia Foundation (undated)
Hemophilia, HMOs & HMO Referrals
David Linney (1995)
Sports and Exercise
Get Moving! Sports & Exercise Guidelines for People with Hemophilia
Baxter Healthcare Corp. (1995)
Get Moving! Sports & Exercise Guidelines for People with Hemophilia (video)
Baxter Healthcare Corp. (1995)
Hemophilia, Sports & Exercise
National Hemophilia Foundation (1996)
Watercise (video)
Armour Pharmaceutical(1991)
Travel
Directory of Hemophilia Treatment Centers
Armour Pharmaceutical (undated)
Travel Guide for People with Hemophilia
Baxter (1999)
Women with Bleeding Disorders
Women with Bleeding Disorders – The Role Of the OB/GYN
Armour Pharmaceutical (1995)
Espanol
Hemophilia y las Familias Hispanas: Un Manual para Padres
Eunice Heredia (1995)
Lo Que Usted Debe Saber Sobre Los Desrdenes de Sangrado
Hemophilia Health Services (1998)
No Seas La Victim Por … La Hemofilia – Como Ser Padres Mas Responsables y Eficaces
Laureen A. Kelley (undated)
Preguntas Y Respuestas Acerca Del HIVy El Sida Para Los Padres de Nios Hemofilicos
Great Lakes Hemophilia Foundation (undated)
Videos
The Better Sex Serise
Learning Corporation (1991)
Coping with Anxiety
Christian Family Video (undated)
Courage and Caring (video)
NHF & Canadian Hemophilia Society (1989)
Finding Our Way Together: People with AIDS and their Caregivers
American Red Cross (undated)
Get Moving! Sports & Exercise Guidelines for People with Hemophilia (video)
Baxter Healthcare Corp. (1995)
Healthy Eating Makes a Difference – A Food Resource Video for People Living with HIV
Canadian Hemophilia Society (undated)
Hemophilia Health Services… for the Human Factor
Hemophilia Health Services (undated)
Hemophilia: Opportunities for Personal Empowerment (video)
Hale & Hearty Productions (undated)
Hemophilia of Indiana Looking Ahead Living with Hemophilia
Indiana State Bd of Health (undated)
HIV/AIDS and African Americans
National Minority Aids Council (undated)
Inside a Bleeding Joint (video)
Miles Inc. (undated)
Laugh Your Way to Health
Goodheart, Inc. (undated)
Learning About Hemophilia (video)
Caremark (undated)
Living with Hemophilia
(undated)
Living with a New Level of Assurance (video)
Miles Inc. (undated)
Patients andCaregivers Tell Their Stories
Centeon (1996)
Ryan White – AIDS Story
Homemade (undated)
Self-Infusion: Gateway to Independence (video)
Armour Pharmaceutical (1991)
Song of Superman (video)
Canadian Hemophilia Society and National Hemophilia Foundation (1992)
Speak Up for Health- Young People with Chronic Illness and Disabilities Speak About Independence in Health Care
Pacer Center (1992)
Stress Management
Wood Knapp Video (1991)
Taking Control: Open Up Your World – A Step-By-Step Guide for Learning Self-Infusion
Aventis Behring (2000)
Treat Yourself to a Brighter Future: Self-Infusion for Hemophilia Care
American Red Cross (undated)
Watercise (video)
Armour Pharmaceutical (1991)
The Winning Spirit (video)
Del. Valley Chapter NHF (undated)
You’re in Charge
State of the Art, Inc and NPHRC (1992)