Hemophilia Association of the Capital Area

Board of Directors

2017-2018 HACA Board of Directors


Long Steve
Name: Steve Long
Board Position: President
Board member since 2013
Connection to the Community: Hemophilia B
Professional Information: Diagnosed after seven years in the Air Force, I was allowed to stay in and retire after 27.5 years. My career was spent in Intelligence with numerous varied reserve tours over the last 18.5 years. Most of my work was in long range planning and crisis management. Currently, I work as a realtor at Avery-Hess Real Estate and enjoy helping people to find the right place to live.
I have been and remain a very active volunteer in the state and national soccer communities, holding numerous offices and chairing and serving on many committees. I still referee and serve as a delegate at large to the Metro-DC Virginia Soccer Association. From 1986-1990 I was president of the Brookland-Bush Hill Civic Association, serving on the Van Dorn Metro Station development committee.
About seven years ago, I became active in the hemophilia community, eventually serving as secretary and now president of HACA. I serve on the scholarship and Blood Brotherhood committees of the Hemophilia Federation of America (HFA).

 
Eboni Morris
Name: Eboni Morris
Board Position: Vice President
Board member since 2012
Connection to the Community: Former Public Policy Director for Hemophilia Federation of America (HFA)
Professional Information: Manager Government Relations & Public Affairs, One Call Care Management
I bring to the board my nonprofit/trade association professional experience and health policy knowledge

 
Joe Victor
Name: Joe Victor
Board Position: Treasurer
Board member since 2015
Professional information: Program Manager, Department of Defense
Connection to community: Married to Callie Victor (McNeil) who is a carrier. Brother-in-law John McNeil has severe A. Mother-in-law Jean Callahan is a past executive director of HACA, and father-in-law Steve McNeil was a HACA board member.
What I bring to the HACA board is experience managing projects/programs with significant financial resources and a broad range of scope and impact. I ensure work contracted by the US Government is accomplished on time; within, or under, budget; and following relevant statutes and regulations. Further, as a recent addition to the community, I have a desire to learn from members how they overcame and adapted to the challenges hemophilia and similar bleeding disorders present children and adults, so I may be better informed, should my wife and I have children who are affected.

 
Mark Antell
Name: Mark Antell
Board member since 2016
Connection to the community: Hemophilia A
Professional information: Retired from the Environmental Protection Agency
I'm one of the few, lucky, hemophilia-affected guys who survived both: a childhood before factor, and, viral contamination of factor.
By 1990, almost everyone with hemophilia had hepatitis C (HCV). I was one of the principals in "People with Bleeding Disorders and HCV," an organization which lobbied to remove institutional barriers to the rapid development and availability of HCV therapy. HACA helped by joining and promoting our Citizen Petition to FDA, a key step! My liver was on the edge of failure when I was cured of HCV. In addition to my HACA work, I also serve on the executive board of the Hemophilia Federation of America.

 
Name: Chrissy Burbank
Board member since 2017
 

 
Name: Meg Bradbury
Board member since 2014

 
Blane Endale
Name: Blane Endale
Board member since 2016
Connection to the community: My connection to the hemophilia community began in March of 2012 when I had my second son, who was born with severe Hemophilia A.
Professional information: Full-time government employee since 2002.
I am a young energetic mother of a hemophiliac. Aside from my personal knowledge, I also bring the experiences I have gained over the last five years with new and emerging hemophilia treatments and programs.

 
Name: Steven Henderson
Board member since 2017
Connection to community: Moderate hemophilia A.
Professional information: Medical assistant at the Virginia Spine Institute.
With my experience with hemophilia, and my experience in the healthcare field, I bring a unique mindset towards the hemophilia community. I hope I can use this to help other members of my community stay informed about what is currently going on in healthcare.

 
Eena Kapoor
Name: Eena Kapoor
Board member since 2014
Connection to the community: Physical therapist at Children’s National Hemophilia Treatment Center
Professional information: Physical therapist for 12 years, working extensively with bleeding disorders, neonatal and pulmonary diagnoses as well as medical volunteering experience in developing countries.
I bring to the board the treatment center perspective, as well as rehabilitative care experience.

 
April Owens
Name: April Owens
Board member since 2016
Connection to community: Industry representative
Professional information: Client Relations Executive, Hemophilia & vWD Specialty Services - CVS Caremark Rx Specialty Services, 10 years
As a board member, I bring my 10 years of industry experience and employer resources. I was a member of the Hemophilia Foundation of Maryland board for nine years.

 
Michelle Stielper
Name: Michelle Stielper
Board member since 2015
Connection to community: I have been actively involved with the bleeding disorders community for the past 14 years since my younger brother was diagnosed. Since then I have also received a personal diagnosis, and have become a mother to an affected son. I have made countless friendships and consider the community an extension of my family.
Professional information: I am currently a stay at home mom or "domestic engineer" and HACA Board of Directors member.
My experiences give me a unique perspective! I have been a community member for quite some years. I was an unaffected sibling - or so I thought - for eight years before receiving my carrier status. Then two years later, I was diagnosed as a hemophiliac or "shemophiliac," as I like to say. Then I went on to have my affected son a few months after receiving an official diagnosis. So, I would say that I can sympathize with an unaffected sibling, an affected individual, and as a parent or caretaker. I try to stay well-versed on the latest and greatest to make sure that I can continue to be a resource for our fellow community members in whatever area that help is needed.

 
Kristin Urbahn
Name: Kristin Urbahn
Board member since 2015
Connection to the community: Carrier and parent of a child with severe Hemophilia A
Professional information: Stay-at-home mother
I bring to the board carrier and caregiver experience and perspective.

 
Kristin Urbahn
Name: Stephanie Phillips
Board member since 2015
Connection to the community: I'm a hemophilia A carrier and an advocate for the bleeding disorder community. My father Stephen Kulenguski, was also a dedicated supporter and member of the Washington, DC, hemophilia community, lived with severe hemophilia until he passed away more than 10 years ago. In 2015, my sister and I co-chaired the National Hemophilia Walk in D.C. in honor of our father.
Professional information: I have worked for Global Business Travel Association for the past five years as a Senior Marketing Manager for the production team. I manage both in-office and overseas staff. I've worked in marketing/communications and event planning throughout my career.
After chairing the National Hemophilia Walk, I wanted to stay involved. I have worked in both fundraising and event management and hope to help with HACA's events.


 

 Fundraising Chair: Stephanie Phillips

 Programming Chairs: Michelle Stielper and Blane Endale

 Governance Chair: Eboni Morris

Additional representation: Hemophilia Federation of America Board Member: Dana Brayshaw (non-voting) and Steve Long (alternate). Term expires January 2019.

Interested in serving on the Board? Contact the HACA executive director via email at This email address is being protected from spambots. You need JavaScript enabled to view it. or  via phone at (703) 352-7641.

 HACA Board of Directors Meetings