Working for change

Advocacy

Your voice matters

HACA advocates for comprehensive access to health care services of people with bleeding disorders.

Advocacy is an important aspect of the bleeding disorders community. HACA participates in advocacy programs on both the state and federal level.

Virginia State Advocacy Events

HACA and the Virginia Hemophilia Foundation partner for an annual advocacy education and stakeholders meeting in November, followed by an overview of the legislative session when it begins in January and weekly check-ins with advocacy consultant Becky Bowers-Lanier.

Maryland State Advocacy Events

The Hemophilia Foundation of Maryland holds an annual advocacy training event and plans legislative visits for their members. Go to the HFM website or email info@hfmonline.com for more information.

Washington Days

The National Hemophilia Foundation holds its annual advocacy events the first week of March each year. The last few years have been virtual due to the COVID-19 pandemic. Go to the NHF website for more information.

Tools

Both the National Hemophilia Foundation and the Hemophilia Federation of America provide advocacy resources on their websites:

Advocacy Days
(hover and click arrows to see all photos)

HACA Legislative Factors

Thanks to CSL Behring for awarding HACA a Local Empowerment for Advocacy Development (LEAD Grant) in 2021. As part of the project, we created a video series, HACA Legislative Factors. Each video is short and informative and were created to give a short lesson on advocacy, using the state LIS system, and how a bill becomes law.

Virginia’s LIS: Legislative Information System

Narrated by Ann Kendall, state advocacy chair

Words Have Power: Advocacy, Lobbying and the IRS

Narrated by Becky Bowers-Lanier, advocacy consultant

From Bill to Law in Virginia

Narrated by Becky Bowers-Lanier, advocacy consultant