Working for change
Advocacy
Your voice matters
HACA advocates for comprehensive access to health care services of people with bleeding disorders.
Advocacy is an important aspect of the bleeding disorders community. HACA participates in advocacy programs on both the state and federal level.
Virginia State Advocacy Events
HACA and the Virginia Hemophilia Foundation partner for an annual advocacy education and stakeholders meeting in November, followed by an overview of the legislative session when it begins in January and weekly check-ins with advocacy consultant Becky Bowers-Lanier.
Maryland State Advocacy Events
The Hemophilia Foundation of Maryland holds an annual advocacy training event and plans legislative visits for their members. Go to the HFM website or email info@hfmonline.com for more information.
Washington Days
The National Hemophilia Foundation holds its annual advocacy events the first week of March each year. Go to the NHF website for more information.
Tools
Both the National Hemophilia Foundation and the Hemophilia Federation of America provide advocacy resources on their websites:
Advocacy Days
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HACA Legislative Factors
Thanks to CSL Behring for awarding HACA a Local Empowerment for Advocacy Development (LEAD Grant) in 2021. As part of the project, we created a video series, HACA Legislative Factors. Each video is short and informative and were created to give a short lesson on advocacy, using the state LIS system, and how a bill becomes law.
Virginia’s LIS: Legislative Information System
Narrated by Ann Kendall, state advocacy chair
Words Have Power: Advocacy, Lobbying and the IRS
Narrated by Becky Bowers-Lanier, advocacy consultant
From Bill to Law in Virginia
Narrated by Becky Bowers-Lanier, advocacy consultant