Educational and Social

Programs & Events

Signature Events

Our Programs

The Hemophilia Association of the Capital Area offers a variety of programs for its members. There are no registration fees to attend any program listed on this page, except a reservation fee for summer camp. Reservations are required to attend; see the Calendar of Events for details on specific events. Contact admin@hacacares.org for more information.

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Classroom setting participants listening to a speaker at a HACA Education Day event

HACA Twinning Program

Since 2020, Kate Greene, Robin Monin, and Jennifer Sleboda have been exploring a potential partnership with the World Federation of Hemophilia Twinning Program, and we are thrilled to share that we are officially taking our first major step forward!

What’s Next:

– The Site Visit (Late August): Robin and Kate will travel to Malawi to meet in person with the Society of Hemophilia and Allied Disorders (SHAD).

– The Partnership Proposal (October): Following the visit, our organizations will co-author a joint proposal.

– The Final Decision (January): We will find out in January if HACA has been officially accepted into the program.

-Want to follow our journey? This page will be updated periodically, or you can stay connected and get updates by adding your name to our Malawi mailing list!

Retreats

  • Chapter Wide Retreat – We started our community wide retreat in September 2025 for all members. It includes an adult track and programs for kids. This year’s retreat will be from Sept 18-20.  For more information and to register please click here
  • Women’s Retreat – This retreat used to take place each September at Meadowkirk at Delta Farm in Middleburg, VA. This event has limited space and is open to all women of the chapter. We are took a break in 2025 to focus on a community retreat
Two women seated smiling, at a HACA retreat
Classroom setting participants listening to a speaker at a HACA Education Day event

Chapter Education Day

Every spring, HACA hosts a daylong educational program covering a wide variety of topics. We offer tailored educational sessions for adults, fun camp activities for youth aged 7–16, and dedicated childcare for little ones under 6. During lunch, we will hold our annual meeting to vote in new board members and express our deep gratitude to those finishing their terms. You’ll also have opportunities to connect with our wonderful sponsors throughout the day. A light breakfast and lunch are provided!

Familia de Sangre Unida – Programming for Spanish-Speaking Members

Each year HACA offers a day of education for its Spanish-speaking members. The event includes two sessions on topics relevant to the members, completely in Spanish, as well as Spanish-speaking representatives from event sponsors who can answer questions on products and services. For more information on this program, please email Brenda

HACA will also be offering interpretation services at select educational events for Spanish-speaking members.

Participants sitting at a table at a Familia de Sangre Unida event
Father and son siting together at a HACA Family Camp Day

Summer Camp

HACA and the Virginia Hemophilia Foundation work together to provide both a family camp session and a summer camp experience for kids with a bleeding disorder and their siblings that live in Virginia or HACA’s coverage area.

Camp Youngblood is a weeklong summer camp for kids ages 7-17 that takes place at Camp Holiday Trails in Charlottesville, VA, usually in July.

 

Social Events

HACA holds two events each year that are created primarily for networking and socializing for all members: the chapter picnic and the holiday gathering. The picnic takes place during August, and the holiday event in December. This year the picnic will be held at Algonkian Regional Park on August 9, and the holiday event will be at the Stacy Sherwood Community Center on Dec 6.  The holiday event includes gifts for the children.

Group of three standing in a picnic pavilion at a HACA social event

Infusion Education

HACA partners with both hemophilia treatment centers – Children’s National Hospital and Georgetown University Hospital – to offer infusion training programs.

HACA and Children’s are providing in-person infusion and injection education sessions twice a year. Look for more details in the HACA weekly Chapter Connection email, or the Events page.

HACA and Georgetown work together to offer virtual infusion training for adult patients and their caregivers. The one hour, one-on-one sessions are scheduled through the HTC, and the Zoom is hosted by HACA. If you are a patient at Georgetown and interested in infusion education, email Michelle Cha at mjc329@georgetown.edu; if you do not attend the HTC but are interested, email Brenda Bordelon at director@hacacares.org.

Von Willebrand Disease Education

HACA offers a vWD Education Day every spring. It will feature two educational sessions that are catered to those living with Von Willebrand Disease. Look for more information in future weekly updates.