Research & Clinical Trials


While treatment for hemophilia and other clotting disorders have vastly improved in the last few decades, ongoing research and trials for new therapies continue.

Both the National Bleeding Disorders Foundation and the Hemophilia Federation of America have created opportunities for people with bleeding disorders to have a voice in research.

NBDF’s Community Voices in Research (CVR) is a community-powered registry that gathers information through surveys and is open to all persons affected by inherited bleeding disorders and their non-affected family members. Click here to enroll.

HFA offers a survey created by community members to find out what research topics are of interest to the bleeding disorders community. Click here for the survey.

Clinical Trials

Follow this link to the National Institute of Health’s listing of clinical trials in bleeding disorders. Talk to your hemophilia treatment center for more information on trials.
Two women holding succulents