Both the National Hemophilia Foundation and the Hemophilia Federation of America have created opportunities for people with bleeding disorders to have a voice in research.
NHF’s Community Voices in Research (CVR) is a community-powered registry that gathers information through surveys and is open to all persons affected by inherited bleeding disorders and their non-affected family members. Click here to enroll.
HFA offers a survey created by community members to find out what research topics are of interest to the bleeding disorders community. Click here for the survey.