Dear *{{Informal Name}}*, |
Thank you for signing up for our twinning emails. My hope is that these will be informative as well as fun. Over the next few months, I am going to walk you through the Twinning process, introduce you to our "Twin" and update you on our progress. If you have any questions about the program, please feel free to reach out to me at admin@hacacares.com. All of our past emails will be archived on our website.
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What Will We be Doing in Malawi? |
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This is it! We are on our way to Malawi in a few very short days! As you can see from the above schedule, there will be no wasted time when we are in country. We will be learning more about SHAD and SHAD will be learning about us to see if we are compatible. Think of it like speed dating between chapters. I think it is important for us all to know what exactly is going on at these meetings, so I will break it down for you. |
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Understanding the Alphabet Soup |
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To get the most out of the schedule it's important to know the lingo! |
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WFH: World Federation of Hemophilia. WFH provides care for people with inherited bleeding disorders around the world. The organization partners with governments and hemophilia treatment centers to enhance knowledge through training and provide tools to identify, support, and treat people living with bleeding disorders in their communities, while promoting global advocacy and collaboration to achieve common goals.
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SHAD: Society for Hemophilia and Allied Disorders, SHAD is the only hemophilia chapter in Malawi and the chapter that we will hopefully be Twinning with. SHAD is a patient-led advocacy and support organization formed in late 2014 in Malawi to help individuals with inherited bleeding disorders. The group works to improve rare disease awareness, treatment access, and medical care in low-income regions.
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NMOCD: National Member Organization Capacity Development. This is a framework and set of guidelines used to help patient societies strengthen their structural, leadership, and operational capabilities
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SWOT analysis: Strengths, Weaknesses, Opportunities, and Threats. A SWOT analysis is a simple planning tool that helps a business or person to make better choices. It divides information into things you can control inside your group and things happening outside in the world.
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HOT Twins: Hemophilia Organization Twinning: These partners emerging and established hemophilia patient organizations for a maximum of four years to share knowledge and skills in areas such as patient education, outreach, fundraising, and the other aspects of operating a successful hemophilia patient organization.
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Who are the Main Players? |
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| Robin Monin: Robin was on the HACA board from 2018-2021 and has served as vice president and president. In 2021, Robin joined the HACA staff as Program Manager. She also has two boys with hemophilia |
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Kate Greene: Kate has been on the HACA board since 2025 and is currently in the role of vice president. She has two children, a daughter and a son who has hemophilia. She's currently a global health consultant, and has worked as a program director for Abt Global and Partners In Health. |
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| Brenda Bordelon: Brenda has served as HACA’s executive director since January 2016, but she’s been part of HACA for more than 15 years. She came to work for the chapter in February 2011 as the chapter administrative assistant |
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Jen Sleboda: Jen was on the HACA board for 6 years and has a son with hemophilia. She is very active in the community and has more than 20 years of international development experience, including work on health financing. She also partnered with a local health-focused civil society organization in Malawi for over four years, from 2019 to 2023 |
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WFH and SHAD (More information on these folks in our next email) |
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Thomas Gowa: WFH regional manager in Africa Evelyn Chadwick: WFH program coordinator
Chimwemwe Chande: CEO of SHAD since 2014, and is a mom of 2 kids with hemophilia. Frances Mkwenembera: volunteers at SHAD and works at the main HTC in Malawi. Coordinates getting medicine to people who need them in country. Dr. Yohannie Mlombe: a hematologist in Malawi who has been on the SHAD board since 2014 and is a founding member of SHAD |
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We will be sending our next email out right after we get back from Malawi. We will talk about our experiences there and introduce you to the SHAD team! |
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Our Contact Information
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